About Us

The UK National PNH Service is renowned worldwide for its expertise in managing patients with PNH. As it is a rare disease, there is a concentration of experience within the Service that cannot be matched elsewhere in the world due to the high numbers of patients managed.

The team regularly provide education both in the UK and worldwide to further the knowledge both in terms of diagnosis and management, and this has improved patient care worldwide through diagnosis and management. There are meetings with health boards, hospitals, doctors, nurses and other healthcare professionals, and we additionally provide a consulting service for the development of new therapies to ensure the best possible care for patients in the future.