What is PNH?
Paroxysmal Nocturnal Haemoglobinuria
PNH is a rare blood condition where blood cells are prone to be attacked by part of the body’s immune system. The process where the red blood cells are destroyed is called “haemolysis” and it is responsible for many of the symptoms of the disease. “Haemolytic PNH” affects about 5 people in a million of the general population. Another 10 people per million have a small PNH clone, but few PNH-type symptoms.
Not all individuals with PNH are affected in the same way. Some patients may have no symptoms, whereas others can experience lots of different complications due to having the illness.