PNH National Services

Blog

The National PNH Service Yearly Newsletter 2024

March 12th, 2024 by Jacqueline Linn

Please  see PDF link below to our latest edition of the yearly newsletter. Going forward, we would like to send this to all via email. Please could we ask that you get in touch with the admin team to provide up to date email address. Newsletter 2024

Read More...

“Update on PNH” – 29 February 2024 (Rare Diseases Day) – 1pm to 1.45pm via Zoom

February 23rd, 2024 by Jacqueline Linn

Join us for an update on PNH from the PNH National Service to celebrate Rare Disease Day 2024 from 1pm to 1.45pm via Zoom. There will also be a chance to ask your questions. Register to attend using this online form: http://tinyurl.com/4w2858wx You will then be sent the Zoom details – please watch out for…

Read More...

Louise Arnold – Advanced Clinical Practitioner

January 15th, 2024 by Jacqueline Linn

Louise Arnold (previously Lead CNS for the PNH Service) has recently qualified as an Advanced Clinical Practitioner. Many of you will know Louise in her capacity as a Clinical Nurse Specialist within the PNH service since the service was set up in 2009.

Read More...

Spring 2023 Covid-19 Vaccinations

June 2nd, 2023 by Jacqueline Linn

For our patients who are immune suppressed or on anti-complement therapy, you are now eligible for a further Covid-19 vaccination.  You are able to book this vaccination via the NHS App or by visiting the NHS website.  If you do not have online access, you can call 119 for free. Through the National Booking Service,…

Read More...

1st IPIG Conference 2023

June 1st, 2023 by Jacqueline Linn

The UK PNH team were pleased to host the First International PNH Interest Group meeting in Harrogate.  A successful 2 day meeting with speakers and attendees worldwide experienced in PNH.  Topics discussed included the history of PNH, current and newer treatments for PNH, and presentations from PNH experience around the world.  

Read More...