Blog
Spring 2023 Covid-19 Vaccinations
June 2nd, 2023 by Jacqueline LinnFor our patients who are immune suppressed or on anti-complement therapy, you are now eligible for a further Covid-19 vaccination. You are able to book this vaccination via the NHS App or by visiting the NHS website. If you do not have online access, you can call 119 for free. Through the National Booking Service,…
Read More...1st IPIG Conference 2023
June 1st, 2023 by Jacqueline LinnThe UK PNH team were pleased to host the First International PNH Interest Group meeting in Harrogate. A successful 2 day meeting with speakers and attendees worldwide experienced in PNH. Topics discussed included the history of PNH, current and newer treatments for PNH, and presentations from PNH experience around the world.
Read More...The National PNH Service Yearly Newsletter 2023
February 14th, 2023 by Jacqueline LinnPlease see the link for our 2023 newsletter. PNH Newsletter 2023 Our newsletter will now come in a yearly installment and going forward, we would like to send the newsletter via email. If you have not already provided us with an email address, please let us know via email or telephone as below. Telephone: 0113…
Read More...PNH Patient and Family Conference – 18th March 2023
February 10th, 2023 by Jacqueline LinnDue to rail strikes planned for 18th March, we now plan to hold the PNH Patient and Family Conference via Zoom. Date: Saturday 18 March 2023 – 10:00 to 13:00 for more information and to register for this event, please use the link below. Please register by 15th March 2023. PNH Patient and Family Conference…
Read More...Regeneron 1947 Trial Now Open
January 19th, 2023 by Jacqueline LinnWe are delighted to announce that the Regeneron 1947 trial is now open for Aplastic Anaemia patients. For more information, please contact the service or discuss at your next appointment.
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