Blog

We would like to invite you to PNH Support’s event to celebrate the 10 year anniversary of PNH Support on Saturday 11 October 2025, being held in Central London at The Wesley, London Euston, NW1 2EZ from 10am to 9.30pm. At the event we will come together to reflect on how far we have come, share…

The PNH Service UK was well represented at the European Haematology Association 2025, presenting data from clinical trials to which we thank patients for participating in and contributing to treatment development (further details available on request).

The International PNH interest group held the second international meeting in Paris in May 2025. Members of the team were involved in the guidelines development day, chairing and lecturing within the conference sessions and updating knowledge on PNH.

Dr Abraham Varghese has changed roles and has now left the PNH Service. Dr Alex Pike has now completed her PhD and has started in post as a consultant within the PNH Service.  Some patients may remember her as our clinical Research Fellow. We wish Dr Varghese luck in his future endeavours.