Blog

Please be advised that there will be planned downtime for the website from 10:00am on 11th April 2026 due to scheduled upgrade works. The outage may last anywhere between 5 and 48 hours. We will aim to keep disruption to a minimum and restore the website as soon as possible following completion of the upgrade.…

We would like to invite you to PNH Support’s event to celebrate the 10 year anniversary of PNH Support on Saturday 11 October 2025, being held in Central London at The Wesley, London Euston, NW1 2EZ from 10am to 9.30pm. At the event we will come together to reflect on how far we have come, share…

The PNH Service UK was well represented at the European Haematology Association 2025, presenting data from clinical trials to which we thank patients for participating in and contributing to treatment development (further details available on request).

The International PNH interest group held the second international meeting in Paris in May 2025. Members of the team were involved in the guidelines development day, chairing and lecturing within the conference sessions and updating knowledge on PNH.