Blog
The National PNH Service Yearly Newsletter 2023
February 14th, 2023 by Jacqueline LinnPlease see the link for our 2023 newsletter. PNH Newsletter 2023 Our newsletter will now come in a yearly installment and going forward, we would like to send the newsletter via email. If you have not already provided us with an email address, please let us know via email or telephone as below. Telephone: 0113…
Read More...PNH Patient and Family Conference – 18th March 2023
February 10th, 2023 by Jacqueline LinnDue to rail strikes planned for 18th March, we now plan to hold the PNH Patient and Family Conference via Zoom. Date: Saturday 18 March 2023 – 10:00 to 13:00 for more information and to register for this event, please use the link below. Please register by 15th March 2023. PNH Patient and Family Conference…
Read More...Regeneron 1947 Trial Now Open
January 19th, 2023 by Jacqueline LinnWe are delighted to announce that the Regeneron 1947 trial is now open for Aplastic Anaemia patients. For more information, please contact the service or discuss at your next appointment.
Read More...National Community Survey in Partnership with the bone Marrow Alliance
November 25th, 2022 by Jacqueline LinnThe PNH Support Group and Aplastic anaemia Trust are currently running the first ever National Community Survey of people living in the UK with bone marrow conditions or caring for those with rare bone marrow conditions. The National Community Survey aims to engage as many people as possible across the UK who are affected by…
Read More...Save-the-Date – Saturday 18 March 2023 – PNH Patient and Family Conference
November 11th, 2022 by Jacqueline LinnExciting news! Our PNH patient/family conference is back co-hosted by PNH Support, PNH Scotland and the PNH National Service! It will be great to see everyone face-to-face after such a long time however those who can’t join in-person will be able to join virtually. We have just secured a venue in Leeds. Details will be…
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