Blog

As a group we welcome you, family and friends to join us for a virtual patient meeting on Saturday 5th November 10am-11.30am on Zoom. The meeting will include: Update of information around PNH and the link to meningococcal infection due to some therapies used in treatment of PNH with Louise Arnold Nurse in the PNH…

Our clinic at the Royal Liverpool hospital is moving to their new building which has recently opened. The location of our PNH clinics will move from 22nd November 2022. Currently, we are still awaiting confirmation of the exact location within the building. However, please see the link below and the map included for more information on our…

We would like to welcome Dr Varghese back to the PNH team.  We are sure many of you will remember Dr Varghese pre-2015.  He returned to Leeds in August and we are pleased to have him back on the team. You may see Dr Varghese is upcoming clinics.

A lovely poem sent in from one of our patients on a clinical trial.  Anticipation killing me Been waiting years for this Just had my last dose of a drug I don’t think I will miss   One complement inhibitor  I’m ready now to trade  For one that does a better job – a well…