PNH National Services

Parliamentary Round Table Discussion for the National PNH Service

Dr Griffin, Dr Kelly, Dr Lowndes, Louise Arnold, Nicola Houghton and patient support groups attended Parliament on 24th April 2024 for a round table rare diseases discussion chaired by Mr O’Dowd.  Baroness Pauline Neville-Jones from the House of Lords was also in attendance.

The discussion was surrounding the service’s unique approach to a rare disease national service, outreach clinics and the role of clinical leadership in facilitating new ways of coordinating care.

May 8th, 2024 by Jacqueline Linn