PNH National Services

PNH Support, PNH Scotland and the PNH National Service: A Patient Meeting.

As a group we welcome you, family and friends to join us for a virtual patient meeting on Saturday 5th November 10am-11.30am on Zoom.

The meeting will include:

Update of information around PNH and the link to meningococcal infection due to some therapies used in treatment of PNH with Louise Arnold Nurse in the PNH team. It will include signs and symptoms and management of possible meningitis type infection.

Managing Fatigue in the setting of a diagnosis of PNH with Claire Traub a specialist Occupational Therapist giving an overview and sharing experience.

You can register with this link

We welcome participation and will take questions. If there are any in advance, please let us know.  We look forward to seeing you on Saturday 5th November at 10am. Saturday 5 November

Please see attached PDF: Patient Virtual Session (1)

October 17th, 2022 by Jacqueline Linn