PNH Support’s 10 Year Anniversary Event

We would like to invite you to PNH Support’s event to celebrate the 10 year anniversary of PNH Support on Saturday 11 October 2025, being held in Central London at The Wesley, London Euston, NW1 2EZ from 10am to 9.30pm.

At the event we will come together to reflect on how far we have come, share some 2025 updates, and look towards the future for PNH Support.

The day will provide a mix of information, support and time for social connection (agenda below). Refreshments and lunch will be provided during the day, and we would be thrilled if you could join us for a celebratory meal in the evening (at the same venue). We will also be inviting some of our PNH Clinical Nurse Specialists’ and clinicians.

This event is free to attend and places are limited, however you are required to be a member of PNH Support to attend. Membership is free and you can sign up here.

We are prioritising places for PNH patients however should there be places available, we will open this up to partners or family members.

To register and for more information please click here.

For those who may need financial assistance to be able to attend, we have a limited number of hotel rooms secured for the Saturday night at the venue of the event, the Wesley Hotel. As these rooms are limited in number, we will need to prioritise those who are travelling furthest and need financial support to stay to enable their attendance at the event. If the cost of travel would also prevent you from attending this event, please let us know when you register so we can discuss if we can assist you.

Please ensure you register to attend by 1 September 2025.

We look forward to seeing you there! Should you have any questions please email contact@pnhuk.org.

Kind regards,

The PNH Support Team