Living with PNH

Receiving a diagnosis of PNH can be overwhelming due to the new diagnosis, and amount of information provided. It can also be a relief, to have reached a diagnosis and commence on a treatment pathway.

Our nursing staff are here to support you through this process and answer any questions. However, it is likely that your friends and family have not heard of PNH and you may not have met anyone with the condition. The patient group allows patients the opportunity to meet up and share their experiences.

You can also read the experiences of 2 patients with their condition and their experience of the PNH National Service via the sidebar.