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Join us for an update on PNH from the PNH National Service to celebrate Rare Disease Day 2024 from 1pm to 1.45pm via Zoom. There will also be a chance to ask your questions. Register to attend using this online form: http://tinyurl.com/4w2858wx You will then be sent the Zoom details – please watch out for…

Louise Arnold (previously Lead CNS for the PNH Service) has recently qualified as an Advanced Clinical Practitioner. Many of you will know Louise in her capacity as a Clinical Nurse Specialist within the PNH service since the service was set up in 2009.

For our patients who are immune suppressed or on anti-complement therapy, you are now eligible for a further Covid-19 vaccination.  You are able to book this vaccination via the NHS App or by visiting the NHS website.  If you do not have online access, you can call 119 for free. Through the National Booking Service,…

The UK PNH team were pleased to host the First International PNH Interest Group meeting in Harrogate.  A successful 2 day meeting with speakers and attendees worldwide experienced in PNH.  Topics discussed included the history of PNH, current and newer treatments for PNH, and presentations from PNH experience around the world.