Blog
“Update on PNH” – 29 February 2024 (Rare Diseases Day) – 1pm to 1.45pm via Zoom
February 23rd, 2024 by Jacqueline LinnJoin us for an update on PNH from the PNH National Service to celebrate Rare Disease Day 2024 from 1pm to 1.45pm via Zoom. There will also be a chance to ask your questions. Register to attend using this online form: http://tinyurl.com/4w2858wx You will then be sent the Zoom details – please watch out for…
Read More...Louise Arnold – Advanced Clinical Practitioner
January 15th, 2024 by Jacqueline LinnLouise Arnold (previously Lead CNS for the PNH Service) has recently qualified as an Advanced Clinical Practitioner. Many of you will know Louise in her capacity as a Clinical Nurse Specialist within the PNH service since the service was set up in 2009.
Read More...Spring 2023 Covid-19 Vaccinations
June 2nd, 2023 by Jacqueline LinnFor our patients who are immune suppressed or on anti-complement therapy, you are now eligible for a further Covid-19 vaccination. You are able to book this vaccination via the NHS App or by visiting the NHS website. If you do not have online access, you can call 119 for free. Through the National Booking Service,…
Read More...1st IPIG Conference 2023
June 1st, 2023 by Jacqueline LinnThe UK PNH team were pleased to host the First International PNH Interest Group meeting in Harrogate. A successful 2 day meeting with speakers and attendees worldwide experienced in PNH. Topics discussed included the history of PNH, current and newer treatments for PNH, and presentations from PNH experience around the world.
Read More...The National PNH Service Yearly Newsletter 2023
February 14th, 2023 by Jacqueline LinnPlease see the link for our 2023 newsletter. PNH Newsletter 2023 Our newsletter will now come in a yearly installment and going forward, we would like to send the newsletter via email. If you have not already provided us with an email address, please let us know via email or telephone as below. Telephone: 0113…
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