PNH National Services

Blog

PNH Support’s 10 Year Anniversary Event

August 29th, 2025 by Emily Groom-White

We would like to invite you to PNH Support’s event to celebrate the 10 year anniversary of PNH Support on Saturday 11 October 2025, being held in Central London at The Wesley, London Euston, NW1 2EZ from 10am to 9.30pm. At the event we will come together to reflect on how far we have come, share…

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EHA Congress June 2025

August 29th, 2025 by Emily Groom-White

The PNH Service UK was well represented at the European Haematology Association 2025, presenting data from clinical trials to which we thank patients for participating in and contributing to treatment development (further details available on request).

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IPIG Meeting Paris 2025

August 26th, 2025 by Emily Groom-White

The International PNH interest group held the second international meeting in Paris in May 2025. Members of the team were involved in the guidelines development day, chairing and lecturing within the conference sessions and updating knowledge on PNH.

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Clinical Team changes 

April 17th, 2025 by Jacqueline Linn

Dr Abraham Varghese has changed roles and has now left the PNH Service. Dr Alex Pike has now completed her PhD and has started in post as a consultant within the PNH Service.  Some patients may remember her as our clinical Research Fellow. We wish Dr Varghese luck in his future endeavours.

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AA-MDS Bone Marrow Failure Summit

March 25th, 2025 by Jacqueline Linn

Dr Griffin and Dr Kulasekararaj presented at the AA-MDS Bone Marrow Failure Summit in Washington on 06/03/25. They presented on the PNH section of the conference.

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