Blog
Save-the-Date – Saturday 18 March 2023 – PNH Patient and Family Conference
November 11th, 2022 by Jacqueline LinnExciting news! Our PNH patient/family conference is back co-hosted by PNH Support, PNH Scotland and the PNH National Service! It will be great to see everyone face-to-face after such a long time however those who can’t join in-person will be able to join virtually. We have just secured a venue in Leeds. Details will be…
Read More...Biocryst Clinical Trial now open
October 31st, 2022 by Jacqueline LinnWe are delighted to be open for the Biocryst 9930-202 clinical trial for patients with extra-vascular haemolysis on a C5 inhibitor.
Read More...PNH Support, PNH Scotland and the PNH National Service: A Patient Meeting.
October 17th, 2022 by Jacqueline LinnAs a group we welcome you, family and friends to join us for a virtual patient meeting on Saturday 5th November 10am-11.30am on Zoom. The meeting will include: Update of information around PNH and the link to meningococcal infection due to some therapies used in treatment of PNH with Louise Arnold Nurse in the PNH…
Read More...Liverpool Outreach Clinic
October 7th, 2022 by Jacqueline LinnOur clinic at the Royal Liverpool hospital is moving to their new building which has recently opened. The location of our PNH clinics will move from 22nd November 2022. Currently, we are still awaiting confirmation of the exact location within the building. However, please see the link below and the map included for more information on our…
Read More...Dr Abraham Varghese
August 23rd, 2022 by Jacqueline LinnWe would like to welcome Dr Varghese back to the PNH team. We are sure many of you will remember Dr Varghese pre-2015. He returned to Leeds in August and we are pleased to have him back on the team. You may see Dr Varghese is upcoming clinics.
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